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Status Awaiting feedback
Created by Toby Page
Created on Jan 28, 2022

RELATED IDEAS

Show additional demographics fields in portal when available

Local authority social care professionals have highlighted a requirement for additional demographic information in the Care Portal.


This might include: Marital Status, Language, Accessibility needs, Ethnicity, Religion, Nationality and Immigration Status.


This information is seen as useful when deciding on how best to manage a person (e.g. language, accessibility). It may also be used to populate local systems (i.e. Liquidlogic) where this information is missing.

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  • Admin
    Marc Baulk
    Reply
    |     Apr 30, 2024

    Sorry, Toby. See below:



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  • Toby Page
    Reply
    |     Mar 28, 2024

    thanks - I don't have access to the YHCR Aha I'm afraid...

  • Admin
    Marc Baulk
    Reply
    |     Mar 28, 2024

    @Guest Can you check this one when you get a sec and let me know if it can be archived please?

    Thank you

  • Admin
    Marc Baulk
    Reply
    |     Feb 27, 2024

    Hi Toby,

    I'm reviewing older 'Planned' ideas to ensure the things we've committed to review, we have a plan to deliver.

    I think this idea is a duplicate of: https://yhcr.aha.io/ideas/ideas/P-I-172

    Can you confirm if this is the case? If so, I would like to archive this ticket to ensure all discussions regarding the concept are held on a single idea log.

    Many thanks

  • Admin
    Ian Clucas
    Reply
    |     Feb 9, 2022

    thanks Toby

    as you know, our data standards are emerging

    https://yhcrfhirigtempwebsite.z33.web.core.windows.net/StructureDefinition-Yhcr-Patient.html

    but we will certainly display the 'must support' fields and I will create a backlog feature to build these into the portal UI

    other fields are classified as optional but that may change based on feedback

  • Toby Page
    Reply
    |     Feb 8, 2022

    Thanks Ian - comments in blue below.


    Marital Status - is a field in the Portal already - Does that mean it'll show if provided? (can't see in any test data)

    Language, Ethnicity, Religion - are within our FHIR IG profiles - As above?

    Accessibility needs - to be considered further but has also been raised at Product Steering Group - Happy to be involved and get input from our data provider organisations. Also, reasonal adjustment flags? https://digital.nhs.uk/services/reasonable-adjustment-flag

    Nationality and Immigration Status - not sure how these impact health and care? I believe there are pending conversations with PRSB - Response from local social care provider: "At the very least, recording and knowing the information helps with determining who draws on the services and potential costs, trends etc.

    Some services/benefits need to be paid for by non-nationals, and that applies to health care and especially social care. But PRSB can help with clarification on such matters.

    Note: whilst a lot of NHS Health care is free at point of care, that is not the case for social care which is dependent on nationality/residence, as well as financial and needs assessments. "

    Are the councils intending to provide data for these fields? If so, we'll need to add them to the Portal roadmap - Yes, they can (and we can add it to the local authority data mapping backlog). I'll ensure anything mapped will align to national standards (working with PRSB), relevant SNOMED code sets and the work being done on data standards in YHCR.

  • Admin
    Ian Clucas
    Reply
    |     Feb 4, 2022

    Hi Toby

    Marital Status - is a field in the Portal already

    Language, Ethnicity, Religion - are within our FHIR IG profiles

    Accessibility needs - to be considered further but has also been raised at Product Steering Group

    Nationality and Immigration Status - not sure how these impact health and care? I believe there are pending conversations with PRSB

    Are the councils intending to provide data for these fields? If so, we'll need to add them to the Portal roadmap